On 8th June 2021, during a discussion on collection of patient care records by the NHS, the Bishop of Carlisle asked a question on the issue of informed consent for patients to opt out of having their data collected and stored:
The Lord Bishop of Carlisle: My Lords, informed consent is at the heart of good patient care. Can the Minister tell us what plans Her Majesty’s Government have to inform patients that they have the right to opt out of having their personal medical information collected in this way? How will this be advertised?
Lord Bethell (Con, DHSC): My Lords, engagement with the Royal Colleges, the BMA and GPs on a one-to-one basis has brought about a system that has a national data opt-out and a tier 1 opt-out with GPs. This is fully explained in all our materials and there has been a campaign to raise awareness among patients. We are taking a brief pause to ensure that patients have almost as much time as they could possibly have to make the decisions they would like to make. That is a wise decision in the circumstances.
The Church of England in Parliament 
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