The Bishop of St Albans received the following written answers on 20th September 2023:
The Lord Bishop of St Albans asked His Majesty’s Government what service the NHS provides for people with fibrodysplasia ossificans progressiva.
Lord Markham (Con, Department of Health & Social Care): While there is no specific prescribed service for fibrodysplasia ossificans progressiva (FOP), children with the condition are cared for by National Health Service paediatric rheumatologists and/or geneticists with input from other clinicians as required. For patients with rare diseases such as FOP, expert centres provide clinical guidance, support and advice to patients, their families, and carers.
Continue reading “Bishop of St Albans asks about rare disease treatments and services”







You must be logged in to post a comment.